Healthcare Advocacy Organizations

General information on accessibility, your rights, advocacy efforts and education for individuals with disabilities and their families, healthcare professionals, caregivers and advocates.

Pennsylvania Health Law Project (PHLP) http://www.phlp.org/
The PHLP provides free legal services and advocacy to Pennsylvanians having difficulties accessing publicly funded health care coverage or services.

Toll Free HelpLine: 1-800-274-3258
TTY: 1-866-236-6310
Email: staff@phlp.org

Disability Rights Network of Pennsylvania (DRN) is a statewide, non–profit corporation designated as the federally mandated organization to advance and protect the civil rights of adults and children with disabilities.

You can contact DRN’s Intake Team to seek advice about disability rights, access to services, abuse, neglect and other issues by calling toll-free 1-800-692-7443 (Voice),  1-877-375-7139 (TDD) or by emailing DRN at intake@drnpa.org.

International Society of Wheelchair Professionals (ISWP) was formed in 2014 with the help of a USAID grant. ISWP’s mission is that wheelchair users are provided the best technology with the best service worldwide. The society consists of wheelchair clinicians, technicians, manufacturers, users, and other stakeholders. Please visit the ISWP website for more information: http://www.wheelchairnet.org

The American Academy of Developmental Medicine and Dentistry

Special Care Dentistry Association

Pennsylvania Elks Home Service Nurses

iCanConnect – The national Deaf-Blind Equipment Distribution Program

Pennsylvania’s Initiative on Assistive Technology (PIAT)

Resources at UPMC:

1. Center for Assistive Technology As a joint program of UPMC and the University of Pittsburgh, CAT provides innovative solutions for individuals with disabilities who need assistive technology for mobility, hearing, speech, and other everyday needs.

Web: www.upmc.com/cat Phone:  412-647-1310 TTY:  412-647-1322

2. Disabilities Resource Center (DRC) The Disabilities Resource Center was established in 2007 to improve access to health care for people with disabilities. The DRC focuses on four main areas to improve accessibility to health care: education and training for staff; assessing and improving the accessibility of UPMC facilities; policy review; and serving as a resource to the community who experience barriers or otherwise identify opportunities for improvement and serving as an internal resource to UPMC programs and departments.

Phone/TTY:  412-605-1483 Email:  DisabilitiesResource@upmc.edu

3. Center for Women with Disabilities at Magee-Women’s Hospital of UPMC The Center for Women with Disabilities at Magee-Women’s Hospital of UPMC has been delivering state-of-the-art preventive health care to women with disabilities since 2001. One of the first such services in the country, the center was designed in consultation with women with disabilities to meet their needs for accessible, regular exams and screenings.

Web:  http://www.upmc.com/locations/hospitals/Magee/Pages/default.aspx Phone:  412-641-1000

4. UPMC’s Eye Center – Low Vision Service UPMC’s Eye Center diagnoses and treats patients with restricted vision abilities, including varying degrees of vision loss, distorted or blurred vision, night blindness, loss of contrast, sensitivity to light, and others. Following the assessment of a patient’s functional visual ability, the ophthalmologists and other eye care professionals may prescribe visual aids, such as magnifying glasses, filters, and other adaptive equipment to help a patient maintain or regain as much sight as possible.

Web:  http://www.upmc.com/Services/eye/services/Pages/contacts.aspx Phone:  412-647-2200 or (toll-free) 1-800-446-3797.

5. Center for Audiology and Hearing Aids The UPMC Center for Audiology and Hearing Aids performs routine and specialized hearing evaluations and provides treatment for permanent hearing loss, including hearing aids, cochlear implants, and other assistive listening devices.

Web:  http://www.upmc.com/Services/ear-nose-throat/services/audiology/Pages/default.aspx  Phone:  412-647-2030

6. UPMC Rehabilitation Institute http://www.upmc.com/Services/rehab/rehab-institute/

Expert Inpatient Care For a Brighter Outlook on Living – As part of the largest rehabilitation network in western Pennsylvania, the UPMC Rehabilitation Institute offers specialized, inpatient care for a variety of conditions, including:

7. UPMC Trauma Resources Families and visitors may have many questions after a traumatic injury.  The resources on these webpage may provide more information for general and detailed information on the traumatic injury or the recovery process. The information here may not apply to the specific patient, but it can give a general idea about what to expect. http://www.upmc.com/locations/hospitals/presbyterian/services/trauma/Pages/resources.aspx

Blind and Vision Rehabilitation Services of Pittsburgh www.blindvr.org

PA Association of the Blind  www.pablind.org

Center for Hearing & Deaf Services http://hdscenter.org/default.asp

Pennsylvania Office for the Deaf and Hard of Hearing (ODHH) Main Office Phone:  717-783-4912 v/tty Main Office Toll-Free (PA Only):  800-233-3008 v/tty

Hearing Loss Association http://www.hla-pa.org/index.htm

Three River Center for Independence Living (TRCIL) http://trcil.myfastsite.net/

The Disability Connection http://www.alleghenycounty.us/dhs/disabilityconnection.aspx

Brain Injury Association of Pennsylvania, Inc. www.biapa.org

Paralyzed Veterans of America — This website is not just for veterans. www.pva.org

United Spinal Association (consumer advocacy group) www.unitedspinal.org

The National Spinal Cord Association www.spinalcord.org

The Children’s Institute provides respite care and other programming.  (412) 420-2400.

United Cerebral Palsy (UCP/CLASS) http://www.ucpclass.org/

Allegheny County Housing http://www.alleghenycounty.us/dhs/housing/disability.aspx

Trauma Survivors Network http://www.traumasurvivorsnetwork.org/

Pittsburgh Area Brain Injury Alliance Support Group — 412-761-9870

Westmoreland Brain Injury Support Group — 724-887-0646 or 412-372-2888

Disabilities-R-U — An online support group: www.disabilities-r-us.com

Monroeville Area Traumatic Brain Injury Peer Support Group —724-887-0646 or 412-372-2888

Community Catalyst and Georgetown University’s Health Policy Institute created a Health Insurance 101 online guide on private health insurance.

State Summary Health Data

 

 

 

 

 

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